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Friday, April 26, 2019

In case of an emergency

Wednesday we went to ALS Clinic where we see all the medical professionals who manage BT's symptoms and get him all the stuff he needs. It's a long morning, not to mention that we have to now travel out of town which necessitates an overnight stay. It's a bit to manage but, once again, my parents are invaluable for caring for the kids. We usually come back exhausted from clinic. And because BT is tired he has a hard doing much of anything. So I was in the bedroom just chilling and he decided to get an ice cream from the freezer and, in standing up, lost his balance and fell over. Now he falls a bit. Not as much as he used to but it is not uncommon sadly. He is stubborn and the loss of independent and of always asking for help does not sit well with him. And he knew I was tired. And the kids were off somewhere else. And he fell. But this time he hit the wall just right and cut his forehead open. I rolled him from his stomach and just screamed because he was covered in blood and there was a puddle of blood on the floor. So I called 911 and they came and took him to the hospital where he got 4 internal stitches and 8 external stitches and now has quite a black eye to boot.

So yeah. I don't even know anymore. He can't do anything for himself anymore. I feel bad for him. It's a lot. It's so much to lose.

And I am tired. Just so tired of everything.

But I am good in a crisis. I know that much for sure now.

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